The response has been out for a week, 8 results and sufficient to report early results (I will update the page once a week). I have updated the survey results on Probiotics. One probiotic had no adverse effects reported and everyone reported improvement.
The clear winner is Macrolides with 83% improving and the most people who have tried it. Tinidazole has 100% improving but only 1/3 as many reports. Second is Metronidazole/Flagyl with 75%, then Doxycycline with 67% and minocycline with 40% and Fluoroquinolone with 33%.. All of these are part of Cecile Jadin’s protocol (which originated in the 1950’s for a similar condition).
The worst ones are Rifampicin and Sulfonamides (sulphur antibiotics) with only negative results. Penicillin have only one positive report to many negative reports.
You can contribute your experience to the survey by clicking here.
As of Nov 23, 2016
| Severe Herx | Significant Worst | Worst | No Change | Better | Significant Better | Have Not Tried | Total | Odd of Better | Odds of Worst | Benefit Odds | |
| Minocycline | 0 | 1 | 1 | 1 | 2 | 1 | 7 | 13 | 50% | 33% | 150% |
| Rifampicin | 1 | 0 | 1 | 0 | 0 | 0 | 10 | 12 | 0% | 100% | 0% |
| Doxycycline | 0 | 1 | 2 | 1 | 2 | 2 | 4 | 12 | 50% | 38% | 133% |
| Macrolides | 0 | 0 | 0 | 1 | 6 | 2 | 4 | 13 | 89% | 0% | |
| Fluoroquinolone | 1 | 1 | 0 | 1 | 2 | 0 | 7 | 12 | 40% | 40% | 100% |
| Metronidazole/Flagyl | 0 | 0 | 0 | 1 | 4 | 0 | 7 | 12 | 80% | 0% | |
| Penicillin/beta-lactam | 1 | 2 | 2 | 2 | 1 | 0 | 5 | 13 | 13% | 63% | 20% |
| Bacitracin | 0 | 0 | 0 | 0 | 0 | 0 | 12 | 12 | 0% | 0% | |
| Sulfonamides | 1 | 0 | 2 | 0 | 0 | 0 | 9 | 12 | 0% | 100% | 0% |
| Tinidazole | 0 | 0 | 0 | 0 | 3 | 0 | 9 | 12 | 100% | 0% |
CFS Remission 